Many Patients Do Not Inform PCP About Personal Genetic Testing Results

Share this content:
People who undergo direct-to-consumer personal genetic test do not share results with primary care physicians.
People who undergo direct-to-consumer personal genetic test do not share results with primary care physicians.

(HealthDay News) — Many individuals who undergo direct-to-consumer personal genomic testing do not share the results with their primary care provider (PCP), according to research published in the Annals of Internal Medicine.

Cathelijne H. van der Wouden, from Utrecht University in the Netherlands, and colleagues describe the characteristics and perceptions of direct-to-consumer personal genomic testing consumers who discuss their results with their PCP. Participants were surveyed before and 6 months after results. Data were included for 1026 respondents.

The researchers found that 63% of respondents planned to share their results with a PCP. At the 6-month follow-up, 27% and 8% reported having shared their results with a PCP or with another health care provider, respectively. Reasons for not sharing results included that results were not important enough (40%) and lack of time (37%). 

Overall, 35% of those who discussed results with their PCP were very satisfied with the encounter and 18% were not at all satisfied. Themes identified in these encounters included actionability of the results or use in care, PCP engagement or interest, and lack of PCP engagement or interest (32%, 25%, and 22%, respectively).

"The proportion that shares results is expected to increase with time after testing as consumers find opportunities for discussion at later appointments or if results become relevant as medical needs evolve," the researchers wrote.

Several authors disclosed financial ties to the biopharmaceutical industry.

Reference

  1. van der Wouden CH, Carere DA, Maitland-van der Zee AH, et al; for the Impact of Personal Genomics Study Group. Consumer Perceptions of Interactions With Primary Care Providers After Direct-to-Consumer Personal Genomic Testing. Ann Intern Med. 2016. doi:10.7326/M15-0995.
You must be a registered member of Endocrinology Advisor to post a comment.

Sign Up for Free e-Newsletters

CME Focus